Why we walk…

IMG_4615c
Right now, babies need all the help they can get. Premature birth affects approximately 380,000 babies in the United States. Many of you know, my own life has been affected by the birth of our son, Jonathan, at 27 weeks.  He is a survivor and a miracle.  He is our Jonathan; our “Gift from God.”

Unfortunately, there are also many others who don’t survive.  Also, many who survive, are in need of constant care and support as their babies grow and hopefully, thrive.

In a week, we will be joining the March for Babies here in the Chicago suburbs and walking alongside those who cared for our precious son, The AMITA NICU Warriors.

I walk for my own son, but I also walk for those who don’t survive prematurity and/or the birth defects they are born with.  We need more research to help babies survive and thrive.  Already, more babies are surviving and thriving that wouldn’t have 10 years ago.  Jonathan is the perfect example of this, and there is much more to learn.  If you’d like to help, please make a secure donation or walk with us!  Together, we can help March of Dimes, so more babies can get the strongest start possible.

We honor Jonathan with this walk.  Look at this guy and his NICU team!

img_2564

We walk in memory of Jesse Amandus, who fought an amazing fight at 24 weeks, but could only be with us for 13 days. IMG_6413

We walk in thanks for the care received in the NICU at AMITA Adventist Hinsdale Hospital, and all of the hands that have helped and continue to help us walk through this journey.

IMG_7561

Please click here if you’d like to make a DONATION.  Thank You for all of your support, love and prayers!

IMG_7556

Advertisements

Choo Choo, I’m 2!!!

img_2617

Jonathan is officially 2 years old and just had his official 24 month check up today!  Here are his stats:

Height 32.28″ (9%)
Weight 11.57KG/25lbs, 8oz (19%)
Head Circumference 19.65″ (81%)

He’s following his curve perfectly, and catching up!  Developmentally he is testing at his age or above, so he not in any therapies and is an official graduate of the NEST developmental clinic!

img_2720img_2719

At the doctor’s waiting room in Streeterville Pediatrics.

img_2564

Graduation and final NEST Clinic appointment! His amazing NICU team!

Jonathan had a Choo Choo train Birthday Party on Saturday and had a great time celebrating with friends and family!  He now has more toys than we know what to do with, so we are trying to open them in stages.

Here, let me help you with that!

img_2598

With his Godfather, Uncle Mike.

He absolutely loves to clean!

On his actual birthday, we had a nice breakfast at YOLK and Jonathan enjoyed his own yummy plate!

Jonathan currently has quite a busy schedule.

Monday – Swimming
Tuesday – Gymnastics
Wednesday – Music
Thursday – FREE day
Friday – Mom Pop Tot (includes play, craft, music and tumbling)

Thank you for following his progress and sending us so much love!

We’ve made it to 6 Months!

IMG_5565

Jonathan is growing, growing, growing! That means he’s eating, eating, eating! Yay! We went to see his pediatrician for his 6 month shots and check up. He now weighs in at 11 pounds 8.5 ounces!  Corrected he’s only 3 months old, and he’s still small for his corrected age, but he grew more in between visits this time and she was really happy with his growth.  He even showed off for her and pushed himself up off of his tummy and was talking away!

IMG_5684

Look at him grabbing her stethoscope!  Ha Ha.  He’s always trying to help!

He enjoys talking with his blue elephant.  I’ve realized elephants seem to be his favorite, so now I’m on the hunt for elephants.   It’s adorable.  As soon as he seems one, he starts smiling.  He has a little one I hang on the canopy of his bassinet and there is an elephant decal on his wall.  He just loves them.

New in his world is that he appears to be teething.  He drools constantly and has fussy moments where all he wants are Sophie or his fists…mommy’s fingers work too!  His pediatrician agreed, he appears to be teething.  We have been given the “all clear” to start feeding him food when he’s ready…holding up his head better and sitting up with less support.  She thinks that will happen in the next month or 2 and we don’t see her for another 3 months.  Wow!  I can’t wait to start making baby food…ha ha.

IMG_5680

Jonathan also got to meet Great-Aunt Karen for the first time at a family birthday party!  Aunt Karen isn’t local, so that was awesome!

Mommy is still at home with Jonathan and trying to encourage developmental milestones.  She still thinks work would be easier, but feels so blessed to have this time and the ability to share it with Jonathan.  We will see the developmental clinic in September and see how they feel things are going as well.

We’ll leave you with these pictures of what Jonathan has been up to!  Thanks for checking in!

IMG_5585IMG_5587IMG_5692IMG_5695

I found grass! I like it!

IMG_5694

Tummy Time is better outside!

37 Weeks

IMG_5060

Mommy singing me songs

Jonathan is growing by the minute!  He is now 4lb, 15oz.  His feeds are up to 45ml every 3 hours (Mommy’s milk).  Do you see what’s missing in the picture below?

IMG_5083

You guessed it!  Jonathan reached his goal this week!  He’s OFF of oxygen!  Amen!  Keep those prayers coming.  We are learning to pace so that we don’t over-tax his breathing working on feeding.  This eating stuff is A LOT of work for our little man.